FHA was founded in 1983 and has been a vital educational resource, network of support and advocate for the bleeding disorders community of Florida. Hemophilia is rare and affects approximately 25,000 people in the US, with the average cost for therapies ranging from $200,000 to over a $1,000,000 per year.
We are a leading resource for patients and families affected by hemophilia, Von Willebrand Disease and other serious bleeding disorders. FHA maintains close relationships with the community. These relationships provide an outlet to become educated about their chronic bleeding disorder and also network with other families who share many of the same experiences. This affords community families to experience emotional support and guidance while living with a costly and often debilitating illness.
FHA hosts several programs throughout the year which includes two state-wide educational conferences that are attended by over 400 patients and their families and are facilitated by providers from all over the country who are experts in the field of bleeding disorders. In addition, we also host specialized educational programs for teens, young adults, women, men, and caregivers. We also host 2-3 fund-raisers per year that raise critical funds for programs such as our Compassionate Care Emergency Assistance Program. Our biggest fund-raiser is our annual Walk and attended by over 800 people annually. The event has raised much-needed awareness and funds to help families affected with bleeding disorders living in Florida.
The Florida Hemophilia Association, Inc (FHA) is a Not-for-Profit organization that is dedicated to enhancing the quality of life in the bleeding disorders community by creating programs and services that provide education, emotional support and advocacy. We are contributing toward research to ultimately find a cure.